Losing a child, no matter the circumstance, is a seismic event for a family. Losing Piper to DIPG felt like the end and the beginning of virtually everything. Like a natural disaster, it was total destruction and reduction, a low point, from which nothing remained, save a barely beating heart. There was no going back to what was before.
As we approach five months without Piper’s precious light, we resolved to rise from the rubble, gather up the pieces, and try to do what she would have done – – make this experience count. We felt the best way to continue her legacy was to officially join forces with The Cure Starts Now, and the more than 40 chapters they have assembled worldwide. By creating a Colorado chapter, we honor all that Piper was and continues to be, while shedding light on DIPG and the irreconcilable funding gap that has persisted far too long.
We remember her as a girl whose magnitude of character left you wondering how such a tiny body could possibly contain so much. Even if you only met Piper once, you would recall how she made you feel, something she said, or the outfit she was clad in that day. She captivated everyone, she left a lasting impression. She harbored a purposefulness, a sureness that made me feel she knew more than we ever will.
She taught us all, and we hope this chapter allows those lessons to be carried on the same wind that carried her name across states and oceans while she battled, and beyond. We hope the work we do continues to contribute meaningful change to the world of pediatric brain cancer, and that in the not so distant future, we will celebrate that hard-won cure together.