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Day #266

Every day, questions and realizations that frighten and strengthen me enter and exit my mind like a busy train station.  As I write this, our house is filled with the sound of two little voices, singing, playing, and imagining together.  I can’t help but helplessly...

Heart Day

Valentine’s Day is just around the corner, and Piper knows it.  She calls it “Heart Day,” which is totally adorable in itself, but not half as much as her preparations for what everybody else considers to be a tertiary holiday.  Hand-crafted...

We Walked Off To Look for America

Before DIPG, we wouldn’t have considered taking two young children to New York City in the winter with absolutely no plan.  But I suppose we can thank DIPG for approximately one thing: it pushes aside unimportant hesitations, makes you consider more than just what’s...

A Girl Worth Fighting For

The power of community should never be underestimated.  You see it all across the world, every day.  People helping people overcome natural disasters, violence, disease, the list goes on.  Our community is something we always had but never understood until Piper’s...

Party Fit For A Princess

As we prepare for Piper’s 4th birthday party, one I refuse to accept could be her last, I have been thinking a lot about how to celebrate in the context of cancer. We have more to celebrate than ever before, but this year our joy is indivisible with DIPG.  The two...